The night Chloe's body was protesting the operation and refusing her colon it's God given job, she was pulling at her leads monitoring her heart. We told her she needed to stop pulling at those or we would have to restrain her hands.
Since Chloe has spina bifida, we are unsure of how her spine was affected by the meningocele developed in utero or how her spine was affected during the removal of the meningocele. Thus we had to use the localized method of treating her pain instead of an epidural, the preferred way. In the middle of the night, obeying her mom by not touching her leads, Chloe chose to pull out two catheters administering pain medication on eash side of the incision.
Her decision to pull out those catheters and our decision not to go back to surgery to reinsert them has caused us to treat her pain with narcotics. Narcotics not only reduce the pain but puts her whole system to sleep. The same system we are trying to wake up and get operating again due to the surgery.
We have found some wonderful stalling techniques to lengthen the time between administering the pain meds so we can her digestive tract back to normal as soon as possible; foot rubs and wagon rides.
I think everyone in the hospital knows us now. We clocked an hour and a half on one outing today. I have gotten quite proficient pulling both the wagon and the stand that holds her IV bags. One thing that would make it easier is a four wheel drive wagon. My trailer backing skills are just not to the level yet that I can back into the waiting elevator without bumping into a wall or running over passengers' toes.
One request for a specific prayer. When we left for our wagon trip Chloe had just had her vitals taken and everything was normal. When we returned, an hour and a half later her temperature ws 101.5. We are not sure what has caused this spike and your prayers for proper treatment would be much appreciated.
Many Blessings
No comments:
Post a Comment