Gloom, despair and agony on me

No, not here.

Chloe did have a blockage and they have removed the section of her bowel causing the problem. However, in correcting the problem, they had to remove the mitrofanoff. The mitrofanoff was put in place to allow Chloe more freedom. She would be able to drain her bladder through a stoma in her belly button. We tried to give her everything but unfortunately that was not the case. Of the three procedures performed, if one had to fail we would have picked the mitrofanoff. As she grows older, if she chooses to have the operation herself to make another mitrofanoff we will support her. But, I would never chose to do this operation just for the sake of convenience. We had to perform the bladder augmentation to save her life so why not give her as much freedom as possible since we were operating. As our surgeon said, he can not improve on what was put in place naturally and he did not.

Chloe had a rough night. Her temperature went up to 103.5 and we had to give her cold water baths much of the night. She got about 3 hours of sleep last night but is doing better this morning. During the operation, they inserted a peripherally inserted central catheter, PIC, to start giving her high protein, fat, vitamin and mineral meals directly into her veins. She is a bit honorery because she can not have water and is now once again pulling off her leads in protest. She is feeling better to have the energy to get into trouble!

The doctors were so apologetic and distraught over the whole course of events for Chloe. Greg and I, although extremely concerned over our daughter, were in the center of God's Peace, Love and Care.

The surgeon just left the room a few minutes ago. He has come up so many times to check on her. He is checking in one last time before he goes out of town for a conference. We will be under the wonderful care of another surgeon but our urologist said when we returns he wants to see Chloe sitting up in bed, eating and smiling. I plan on seeing that happen for him.

He also told me that he is going to have Greg talk to other families. He has discovered what I knew all along. I have a great man full of love, common sense, compassion and faith.

We were told by a dear person in my life that our lives would reflect the love of Jesus to our surgeon and I think God allowed me to see this to confirm that He is here and has been here with us all along.

I am still waiting to see what God works out with the Bulldog puppies!