What are the odds?
Chloe was recovering well the day after her colon resection. We were coloring, playing doctor and reading books.
I was so pleased. The little one went through such an ordeal with the obstruction. The obstruction occurred in the place where part of the colon was taken to add to her bladder to enlarge it. There was just a small band of scar tissue that formed and would not allow anything to pass after a small distance into the small intestine. The doctors had to take the section of colon out that was scarred and then manually squeeze the content of her bowels through the rest of her digestive track.
Can you imagine how sore you would be after that. However, little Chloe woke up the next morning with a few smiles for us.
So, you might all guess she is quickly getting back to herself and plotting how she can get in trouble here on TCH level 6.
We are again in that minority of 1 out of 5,000.
Chloe has another obstruction. Please pray with us that we do not have to go back to surgery. Everyone is keeping a close eye on her. All the nurses are eager to have Chloe as their patient. We are trusting God and have faith that we will be home this weekend.
Last night as Chloe was screaming in pain, burning with yet another fever and unable to sleep, I remembered my wish to be a Christian example to those here at the hospital. I cried out to God that I did not have in mind my child going through this much pain for us to be a Christian example to others. He quickly reminded me that He sent his Child through much more than mine was going through. I humbly stood corrected, asked for forgiveness and peace for my little one.
It is not all about me or my child. It is about His Child and I pray that all will take notice of the One we have received peace and salvation from and desire to follow Him also.
Hoping the odds are better than 1 in 5,000.
In His Name,
Amy
Tuesday, May 31, 2011
Saturday, May 28, 2011
You're a sly one, Misses G
Chloe was in the hospital December 2010 on her fist ever Christmas. The Children's Hospital in Colorado Springs set a standard for Santa that Greg and I will never be able to uphold. Her first introduction to Santa and the Grinch are always talked about when she thinks of that first stay in an United States Hospital.
Her love for Santa and Mr. Grinch are deeply entrenched.
Like Santa she loves to give.
Like the Grinch she is very sly.
She is feeling much better this morning. She still has orders for nothing by mouth which is extremely hard on her.
Chloe is in a constant state of thirst due to her kidney disease. At home she has a glass of ice water where ever she goes. I think it is interesting that the water has to be as cold as possible. In China, drinks are warm or hot. The water comes out of the water fountains hot for tea making. Chloe absolutely refuses to drink anything even the slightest bit warm. Unless, it is authentic Chinese green tea with no sweetener in it.
All yesterday, through the night and this morning she has been begging for water and ice.
She has been a little trooper, but nine days without food and water by mouth is hard to explain to a five year old.
This is where Misses G begins her sly plotting. She asked me for her hair to be washed this morning even though we had washed it twice yesterday and once the day before. She wanted to drink the water in the basin used to rinse her hair. Next, she demanded to be allowed to wash her face. I caught her several times sucking on the wash cloth. Finally, in a last ditch effort, she requested to brush her teeth. No, I have not caught on yet. As pride filled my bosom in my little girls personal hygiene skills, it quickly was deflated of its pride and filled with pain when she asked for a cup of water to rinse her mouth with. She will not give up and that is a good thing. I admire the strength of this 25 pound 37 inch butter bean!
Back to coloring Sponge Bob pictures for her to keep her mind off her cavernous empty stomach.
Many Blessings and Lots of Love,
Amy
Her love for Santa and Mr. Grinch are deeply entrenched.
Like Santa she loves to give.
Like the Grinch she is very sly.
She is feeling much better this morning. She still has orders for nothing by mouth which is extremely hard on her.
Chloe is in a constant state of thirst due to her kidney disease. At home she has a glass of ice water where ever she goes. I think it is interesting that the water has to be as cold as possible. In China, drinks are warm or hot. The water comes out of the water fountains hot for tea making. Chloe absolutely refuses to drink anything even the slightest bit warm. Unless, it is authentic Chinese green tea with no sweetener in it.
All yesterday, through the night and this morning she has been begging for water and ice.
She has been a little trooper, but nine days without food and water by mouth is hard to explain to a five year old.
This is where Misses G begins her sly plotting. She asked me for her hair to be washed this morning even though we had washed it twice yesterday and once the day before. She wanted to drink the water in the basin used to rinse her hair. Next, she demanded to be allowed to wash her face. I caught her several times sucking on the wash cloth. Finally, in a last ditch effort, she requested to brush her teeth. No, I have not caught on yet. As pride filled my bosom in my little girls personal hygiene skills, it quickly was deflated of its pride and filled with pain when she asked for a cup of water to rinse her mouth with. She will not give up and that is a good thing. I admire the strength of this 25 pound 37 inch butter bean!
Back to coloring Sponge Bob pictures for her to keep her mind off her cavernous empty stomach.
Many Blessings and Lots of Love,
Amy
Friday, May 27, 2011
Gloom, despair and agony on me
No, not here.
Chloe did have a blockage and they have removed the section of her bowel causing the problem. However, in correcting the problem, they had to remove the mitrofanoff. The mitrofanoff was put in place to allow Chloe more freedom. She would be able to drain her bladder through a stoma in her belly button. We tried to give her everything but unfortunately that was not the case. Of the three procedures performed, if one had to fail we would have picked the mitrofanoff. As she grows older, if she chooses to have the operation herself to make another mitrofanoff we will support her. But, I would never chose to do this operation just for the sake of convenience. We had to perform the bladder augmentation to save her life so why not give her as much freedom as possible since we were operating. As our surgeon said, he can not improve on what was put in place naturally and he did not.
Chloe had a rough night. Her temperature went up to 103.5 and we had to give her cold water baths much of the night. She got about 3 hours of sleep last night but is doing better this morning. During the operation, they inserted a peripherally inserted central catheter, PIC, to start giving her high protein, fat, vitamin and mineral meals directly into her veins. She is a bit honorery because she can not have water and is now once again pulling off her leads in protest. She is feeling better to have the energy to get into trouble!
The doctors were so apologetic and distraught over the whole course of events for Chloe. Greg and I, although extremely concerned over our daughter, were in the center of God's Peace, Love and Care.
The surgeon just left the room a few minutes ago. He has come up so many times to check on her. He is checking in one last time before he goes out of town for a conference. We will be under the wonderful care of another surgeon but our urologist said when we returns he wants to see Chloe sitting up in bed, eating and smiling. I plan on seeing that happen for him.
He also told me that he is going to have Greg talk to other families. He has discovered what I knew all along. I have a great man full of love, common sense, compassion and faith.
We were told by a dear person in my life that our lives would reflect the love of Jesus to our surgeon and I think God allowed me to see this to confirm that He is here and has been here with us all along.
I am still waiting to see what God works out with the Bulldog puppies!
Chloe did have a blockage and they have removed the section of her bowel causing the problem. However, in correcting the problem, they had to remove the mitrofanoff. The mitrofanoff was put in place to allow Chloe more freedom. She would be able to drain her bladder through a stoma in her belly button. We tried to give her everything but unfortunately that was not the case. Of the three procedures performed, if one had to fail we would have picked the mitrofanoff. As she grows older, if she chooses to have the operation herself to make another mitrofanoff we will support her. But, I would never chose to do this operation just for the sake of convenience. We had to perform the bladder augmentation to save her life so why not give her as much freedom as possible since we were operating. As our surgeon said, he can not improve on what was put in place naturally and he did not.
Chloe had a rough night. Her temperature went up to 103.5 and we had to give her cold water baths much of the night. She got about 3 hours of sleep last night but is doing better this morning. During the operation, they inserted a peripherally inserted central catheter, PIC, to start giving her high protein, fat, vitamin and mineral meals directly into her veins. She is a bit honorery because she can not have water and is now once again pulling off her leads in protest. She is feeling better to have the energy to get into trouble!
The doctors were so apologetic and distraught over the whole course of events for Chloe. Greg and I, although extremely concerned over our daughter, were in the center of God's Peace, Love and Care.
The surgeon just left the room a few minutes ago. He has come up so many times to check on her. He is checking in one last time before he goes out of town for a conference. We will be under the wonderful care of another surgeon but our urologist said when we returns he wants to see Chloe sitting up in bed, eating and smiling. I plan on seeing that happen for him.
He also told me that he is going to have Greg talk to other families. He has discovered what I knew all along. I have a great man full of love, common sense, compassion and faith.
We were told by a dear person in my life that our lives would reflect the love of Jesus to our surgeon and I think God allowed me to see this to confirm that He is here and has been here with us all along.
I am still waiting to see what God works out with the Bulldog puppies!
Thursday, May 26, 2011
Surgery
Chloe has had several wonderful people working tirelessly as a group today to figure out what is going on with her little body.
Her digestive system is not able to get anything from her stomach into her small intestine.
She has lost weight. Weight she did not have to lose. Her hair is falling out. Hair that she wanted to grow long. She is in much pain. A far cry from the little trickster she is at home.
She was just taken back to surgery to determine if she has a blockage. The procedure should take about 2 hours.
I have Greg, Nathan, Raeya and Daisy the pregnant bulldog here with me. Balin is spending the night with a friend.
The team of doctors here are wonderful. We have had such great care from house keeping, volunteers, CNA's, nurses, doctors, of course the Harley Davidson Rocky Mountain Riders and friends and neighbors that generously offered to take our kids to school at 8am when their children did not need to go to school, or the dad that picked my kids up from school on a day his daughter was not in school. Most importantly however, Chloe is in the hands of our Lord Jesus Christ.
We love Him, honor Him, and praise Him through all of this.
Her digestive system is not able to get anything from her stomach into her small intestine.
She has lost weight. Weight she did not have to lose. Her hair is falling out. Hair that she wanted to grow long. She is in much pain. A far cry from the little trickster she is at home.
She was just taken back to surgery to determine if she has a blockage. The procedure should take about 2 hours.
I have Greg, Nathan, Raeya and Daisy the pregnant bulldog here with me. Balin is spending the night with a friend.
The team of doctors here are wonderful. We have had such great care from house keeping, volunteers, CNA's, nurses, doctors, of course the Harley Davidson Rocky Mountain Riders and friends and neighbors that generously offered to take our kids to school at 8am when their children did not need to go to school, or the dad that picked my kids up from school on a day his daughter was not in school. Most importantly however, Chloe is in the hands of our Lord Jesus Christ.
We love Him, honor Him, and praise Him through all of this.
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